#3291. Reviewing causes of death of individuals with intellectual disability in New South Wales, Australia: a record-linkage study

September 2026publication date
Proposal available till 17-05-2025
4 total number of authors per manuscript0 $

The title of the journal is available only for the authors who have already paid for
Journal’s subject area:
Arts and Humanities (miscellaneous);
Rehabilitation;
Psychiatry and Mental Health;
Neurology (clinical);
Neurology;
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Abstract:
People with intellectual disability (ID) have a much higher mortality rate than the general population. The research aimed to quantify the impact of formal reviews of deaths on the understanding of causes of death of people with ID who died while living in residential care. Individuals (851) with ID who died in residential care. We conducted our analysis through both descriptive comparison and through two boosted regression trees. Approximately half of the underlying causes of death were different after review. For deaths where there was no agreement at any level between the datasets, a high level of unknown causes of death was recorded. Formal review of deaths of people with ID in residential care is important to determining true causes of death and therefore developing appropriate health policy for people with ID.
Keywords:
developmental disability; diagnostic errors; health care quality improvement; health services research; intellectual disability

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