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#12314. Limits of data anonymity: lack of public awareness risks trust in health system activities
| August 2026 | publication date |
| Proposal available till | 11-05-2025 |
| 4 total number of authors per manuscript | 0 $ |
| The title of the journal is available only for the authors who have already paid for |
| Journal’s subject area: |
| Political Science and International Relations; Sociology and Political Science; Public Administration; |
| place 1 | place 2 | place 3 | place 4 |
| Free | Free | Free | Free |
| 2350 $ | 1200 $ | 1050 $ | 900 $ |
Contract №12314.1   | Contract №12314.2 | Contract №12314.3 | Contract №12314.4 |
1 place - free (for sale)
2 place - free (for sale)
3 place - free (for sale)
4 place - free (for sale)
More details about the manuscript: Science Citation Index Expanded or/and Social Sciences Citation Index
Abstract:
Public trust is paramount for the well functioning of data-driven healthcare activities such as digital health interventions, contact tracing, or the build-up of electronic health records. Maintaining privacy and anonymity of personal data contribute to the trustworthiness of these healthcare activities and are associated with the public willingness to trust these activities with their personal data. An analysis of online news readership comments about the failed care.data program in England revealed that parts of the public have a false understanding of anonymity in the context of privacy protection of personal data as used for healthcare management and medical research. Some of those commenting demanded complete anonymity of their data to be willing to trust the process of data collection and analysis. As this demand is impossible to fulfil and trust is built on a false understanding of anonymity, the inability to meet this demand risks undermining public trust. Since public concerns about anonymity and privacy of personal data is increasing, a large-scale information campaign about the limits and possibilities of anonymity with respect to the various uses of personal health data is needed to help the public to make better-informed choices about providing personal data.
Keywords:
Anonymity; Data literacy; Identifiable data; Privacy protection; Trust
Contacts :
2 place - free (for sale)
3 place - free (for sale)
4 place - free (for sale)
More details about the manuscript: Science Citation Index Expanded or/and Social Sciences Citation Index
Abstract:
Public trust is paramount for the well functioning of data-driven healthcare activities such as digital health interventions, contact tracing, or the build-up of electronic health records. Maintaining privacy and anonymity of personal data contribute to the trustworthiness of these healthcare activities and are associated with the public willingness to trust these activities with their personal data. An analysis of online news readership comments about the failed care.data program in England revealed that parts of the public have a false understanding of anonymity in the context of privacy protection of personal data as used for healthcare management and medical research. Some of those commenting demanded complete anonymity of their data to be willing to trust the process of data collection and analysis. As this demand is impossible to fulfil and trust is built on a false understanding of anonymity, the inability to meet this demand risks undermining public trust. Since public concerns about anonymity and privacy of personal data is increasing, a large-scale information campaign about the limits and possibilities of anonymity with respect to the various uses of personal health data is needed to help the public to make better-informed choices about providing personal data.
Keywords:
Anonymity; Data literacy; Identifiable data; Privacy protection; Trust
Contacts :
