#11452. A scoping review of case law relating to support and treatment for people with Prader-Willi Syndrome

August 2026publication date
Proposal available till 22-05-2025
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Journal’s subject area:
Law;
Pathology and Forensic Medicine;
Psychiatry and Mental Health;
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More details about the manuscript: Science Citation Index Expanded or/and Social Sciences Citation Index
Abstract:
Prader-Willi Syndrome (PWS) is a complex multisystem genetic disorder associated with several challenges for people with PWS themselves, and for their families and care givers. Particularly where disagreements arise and, in the absence of comprehensive guidance for care providers, the courts may be called upon to resolve these difficult issues. 1) To review case-law from English-speaking common law jurisdictions concerning support arrangements for people with PWS with a view to identifying issues that have required the intervention of the courts. 2) To identify principles on which to base clinical guidelines relating to the issues identified, ensuring that such guidelines are consistent with ethical and human rights imperatives. Westlaw and Lexis Nexis were searched for case law concerning the treatment or support of a person with PWS. Areas requiring judicial decision making included a) detention in psychiatric hospital; b) support in least restrictive environments c) eligibility for support services; d) guardianship; e) access to special education.
Keywords:
Capacity; Coercion; Intellectual disability; Prader Willi Syndrome; PWS; United Nations convention on the rights of persons with disabilities

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