#11400. Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills

August 2026publication date
Proposal available till 17-05-2025
4 total number of authors per manuscript0 $

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Journal’s subject area:
Health (social science);
Health Professions (all);
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More details about the manuscript: Science Citation Index Expanded or/and Social Sciences Citation Index
Abstract:
To improve health equity, as well as equity in research, community-engaged research and participatory research needs to be inclusive. Equity in health research refers to the principle that anyone affected by research or who can benefit from its outcomes should have equal opportunities to contribute to it. Many researchers advocate the importance of promoting equity in research and engage in processes that foster the research involvement of lay persons, patients, and community members who are otherwise “absent” or “silent”. Low literacy is a major barrier to equity in health research. Yet there exist approaches and methods that promote the engagement in research of people with literacy challenges. Our aim in this commentary is to report on this co-creation experience that was based on a social justice-oriented partnership. In the development process, the co-creation steps included a literature review, informal interviews with key informants, and discussion and writing sessions about format and content. After numerous challenges raised and addressed during co-creation, the Engage digital platform for engagement in research went live in the winter of 20XX. This platform presents, on an equal footing, approaches and methods from academic research as well as from the literacy education community engaged with people with limited literacy skills.
Keywords:
Co-creation; Equity in research; Inclusivity; Literacy; Participatory research; Patient and public involvement; Popular education; Visual methods

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